‘Wildly unreasonable’: agency slashes mother’s NDIS funding and then her daughter’s

When Jannine Scott first joined her daughter Bethany on the national disability insurance scheme, it was "life-changing".

The scheme funded in-home support workers for Scott, who has a spinal cord condition, and even paid for a power wheelchair and other assistive technology.

"I am sitting in my wheelchair at the moment, and without that piece of equipment, I would have been housebound much, much sooner," she said. "But the effort it takes to engage with this part of the government now is becoming wildly unreasonable."

Like a growing number of people who are complaining about what the federal opposition claims are "stealth" cuts to the NDIS, Scott said her NDIS experience took a dark turn in the middle of the year.

In the latest case where the National Disability Insurance Agency had scrapped supports it had previously funded, Scott said cuts to the tune of tens of thousands of dollars had left the family struggling to cope with daily life.

She is primary carer to two children including a three-year-old, Bethany, 11, and Scott's mother, who has Alzheimer's disease.

Bethany, who is home-schooled, was diagnosed with autism at the very early age of 18 months, lives with epilepsy and a rare genetic condition that impacts her mobility.